it is hot
hello,
it is sunday evening. alison is watching the espy awards because lance armstrong is hosting. well we are flipping between that and Reno 911. It's funnier than Lance.
Friday was day +100. It was quite intense for me. I had to get up at 630 am. my mom, alison and i went to Hackensack and arrived at the hospital around 8:20 am-I got some blood taken-Then I knew I was waiting for a bone marrow biopsy and hoping to get my hickman out. The bone marrow biopsy was done by my doctor, Dr. Rowley. It was one of the best bone marrow biopsies i have ever had. i think it was my twelfth bone marrow biopsy. They are quite painful but usually the doctor injects lidocaine which numbs the area. Dr. Rowley only needed to do the first part of the bone marrow biopsy. The second part hurts more than the second part because it is when they get a piece of bone and it feels like someone is jackhammering your back. After he finished the biopsy and we talked for a little while, i went back into the room to get more blood drawn and wait for the surgeon to come. I needed to get blood drawn for what is called a chimerism. It will detect the percentage of graft in my body that is my donor's and that is mine. We want it to be 100% donor and 0% me.
While waiting for the surgeon, the social worker also came in. I talked to her for a while. I was jokingly talking about how when I got better I was going to shoot rabbits because of the ATG. When I was in the hospital, the ATG (which is rabbit serum) really disabled me for a few days. So to this response, she was like "oh so from this you are really angry.". I was like "no, i'm joking"...
so i don't know-she wants to see me on tuesday but i am not sure. i need to figure out if i want to see someone from the hospital or go elsewhere that has no relation to the hospital.
So then the surgeon came in and took out my hickman. It sorta hurt because it had been in for a while so she had to pull pretty hard. I was also told that for 2-3 days, I could not get it wet, so no swimming for me.
So by 12 noon-I was exhausted.
I was told that I was allowed to go into the ocean though and that made me happy. but also told that i have to watch out for the sun and should not be at the beach in the very strong parts of the day.
I go back to Hackensack Hospital next week and then after that, I need to make an appt-to go to the Cancer Institute and see my doctor, Dr. Schaar. i haven't seen him in months.
I might be going to the Yankee game tomorrow night, but there are a few factors that are going to play into this.
I am somewhat concerned about the amount of people and I am even more concerned about the heat.
I must go to sleep.
good night.
xo
~jenn
it is sunday evening. alison is watching the espy awards because lance armstrong is hosting. well we are flipping between that and Reno 911. It's funnier than Lance.
Friday was day +100. It was quite intense for me. I had to get up at 630 am. my mom, alison and i went to Hackensack and arrived at the hospital around 8:20 am-I got some blood taken-Then I knew I was waiting for a bone marrow biopsy and hoping to get my hickman out. The bone marrow biopsy was done by my doctor, Dr. Rowley. It was one of the best bone marrow biopsies i have ever had. i think it was my twelfth bone marrow biopsy. They are quite painful but usually the doctor injects lidocaine which numbs the area. Dr. Rowley only needed to do the first part of the bone marrow biopsy. The second part hurts more than the second part because it is when they get a piece of bone and it feels like someone is jackhammering your back. After he finished the biopsy and we talked for a little while, i went back into the room to get more blood drawn and wait for the surgeon to come. I needed to get blood drawn for what is called a chimerism. It will detect the percentage of graft in my body that is my donor's and that is mine. We want it to be 100% donor and 0% me.
While waiting for the surgeon, the social worker also came in. I talked to her for a while. I was jokingly talking about how when I got better I was going to shoot rabbits because of the ATG. When I was in the hospital, the ATG (which is rabbit serum) really disabled me for a few days. So to this response, she was like "oh so from this you are really angry.". I was like "no, i'm joking"...
so i don't know-she wants to see me on tuesday but i am not sure. i need to figure out if i want to see someone from the hospital or go elsewhere that has no relation to the hospital.
So then the surgeon came in and took out my hickman. It sorta hurt because it had been in for a while so she had to pull pretty hard. I was also told that for 2-3 days, I could not get it wet, so no swimming for me.
So by 12 noon-I was exhausted.
I was told that I was allowed to go into the ocean though and that made me happy. but also told that i have to watch out for the sun and should not be at the beach in the very strong parts of the day.
I go back to Hackensack Hospital next week and then after that, I need to make an appt-to go to the Cancer Institute and see my doctor, Dr. Schaar. i haven't seen him in months.
I might be going to the Yankee game tomorrow night, but there are a few factors that are going to play into this.
I am somewhat concerned about the amount of people and I am even more concerned about the heat.
I must go to sleep.
good night.
xo
~jenn
posted by Jenn at 10:35 PM
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