Tuesday, May 30, 2006

happy memorial day

the night before my doctor's visits, i usually have these awful dreams about my counts going down.
but fortunately, everything is looking okay. my counts are all pretty good.
my doctor's appt. was pretty quick today, and the only decision made was that next week, they would take out my hickman-that is the catheter i have in with two lines that allows for the nurses to take blood, administer transfusions, iv medications and anything else. i am sorta not in accordance but my one doctor said that i haven't been using it for more than 5 weeks than just getting my blood tested and since it is draining a little bit, it would be better to get it taken out.
the tinglies, i am still hving, she thinks could be mini-gvhd. she said as long as it stays this way, i will not need to go on steroids.
she also told me to stay completely out of the sun because of my skin and it may increase the GVHD and that i should just go oout for walks during the night. it is so hot out right now that i don't mind staying in the air conditioned apartment.
i'm tired today. i had to get up early for my doctor's appt. i will write more soon.
xo
jenn

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