monday's dr. appt
so for now, i am going to the doctor every monday or every week. next week will be tuesday bc of memorial day.
i had this awful dream lastnight that my counts went down real low. my wbc was at .84, my hemoglobin was 7.3 and my platelets were really really low, and outside of my hospital room instead of a nurse's station was bar. oh so i had a nurse that was injecting this stuff called neupogen-which stimulates the bone marrow to increase counts, usually the white count first, but she gave me five injections. and she kept injecting me in the face. and i kept saying to this nurse "you know my arm or leg is fine" and she was like "no" and i had all these welts on my face-so weird, because i have not had to use neupogen. but then i said to the nurse, "am i getting any transfusions?" (because my counts were so low) and she just said "no the doctor has ordered you drink a guinness"...so i woke up today, terrified that i was in for some low counts. i think it was this antihistamine med that i am taking sometimes for these tingly nerve feelings i get through my body. But it was kinda funny.
My counts are doing okay. My wbc went down a little bit to 4.4 but still good. My hemoglobin was 11.8 which is fine and my platelets went down a little more to 106. The doctor thought last week, i was possibly showing signs of GVHD but this week has ruled that out. He doesn'jt believe i am showing symptoms of that. Today is day +47, almost halfway there.
The doctor told me about how long I would be on most of my medications. I get off the antifungal-my diflucan-in about a month. Then after 6 months, I can stop the prograf and probably the high blood pressure medication and folic acid. For a year, I will be taking antibiotics. I take penicillin, acyclovir, bactrim. The other medication that I am stopping today is a birth control pill. I also take 266 milligrams of magnesium and protein 3 x a day and that will probably stop or lessen when I get off the prograf.
The only other thing that we look for is the GVHD and well the CMV. BUT if i get GVHD, I will most likely go on steroids. If i get Acute which happens in the first 100 days, I Will be on massive doses of steroids, approx 160 mg a day-for a while.
My mother just almost made me cry-but i held it in. She said that watching me go through the ATG-the rabbit crap that really made me sick before my bone marrow transplant was harder than childbirth.
i had this awful dream lastnight that my counts went down real low. my wbc was at .84, my hemoglobin was 7.3 and my platelets were really really low, and outside of my hospital room instead of a nurse's station was bar. oh so i had a nurse that was injecting this stuff called neupogen-which stimulates the bone marrow to increase counts, usually the white count first, but she gave me five injections. and she kept injecting me in the face. and i kept saying to this nurse "you know my arm or leg is fine" and she was like "no" and i had all these welts on my face-so weird, because i have not had to use neupogen. but then i said to the nurse, "am i getting any transfusions?" (because my counts were so low) and she just said "no the doctor has ordered you drink a guinness"...so i woke up today, terrified that i was in for some low counts. i think it was this antihistamine med that i am taking sometimes for these tingly nerve feelings i get through my body. But it was kinda funny.
My counts are doing okay. My wbc went down a little bit to 4.4 but still good. My hemoglobin was 11.8 which is fine and my platelets went down a little more to 106. The doctor thought last week, i was possibly showing signs of GVHD but this week has ruled that out. He doesn'jt believe i am showing symptoms of that. Today is day +47, almost halfway there.
The doctor told me about how long I would be on most of my medications. I get off the antifungal-my diflucan-in about a month. Then after 6 months, I can stop the prograf and probably the high blood pressure medication and folic acid. For a year, I will be taking antibiotics. I take penicillin, acyclovir, bactrim. The other medication that I am stopping today is a birth control pill. I also take 266 milligrams of magnesium and protein 3 x a day and that will probably stop or lessen when I get off the prograf.
The only other thing that we look for is the GVHD and well the CMV. BUT if i get GVHD, I will most likely go on steroids. If i get Acute which happens in the first 100 days, I Will be on massive doses of steroids, approx 160 mg a day-for a while.
My mother just almost made me cry-but i held it in. She said that watching me go through the ATG-the rabbit crap that really made me sick before my bone marrow transplant was harder than childbirth.
posted by Jenn at 8:49 PM
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