update
hello,
so this week has been pretty good. i had a doctors appt on tuesday-my counts are doing "okay". my hemoglobin and white blood cells are in normal range, however my platelets are low. not low for transfusions yet, but hopefully they will come back on their own. once again, dr. rowley talked about this possibly being the GVHD that I am having. He noticed my face was red, my skin was red which I don't see nor does anyone else, but he knows what to look for. If it stays the way it is I will not have to be medicated. He said it coudl go away on its own. He also put me on a beta blocker because my heart rate is sorta fast. it is a lot mroe fast when i am there and i tried to tell him that but he still put me on the beta blocker.
at night when i was home i took it and it drastically decreased my heart rate and my blood pressure but in my opinion it was going too low. my heart rate was 62 beats per minute and my blood pressure was around 100 or 90/50. i called the next day and asked to decrease the dosage because I felt that this was too drastic of a decline. so they cut my dosage in half.
I have been vomiting a little bit this week again, which hasn't haappened in a while. I do not know if it is the new medication or GVHD. It has been nothing extreme, only 2 times, for one day, but nausea is back a little more.
It is saturday morning and i have to get myself together. i like to go out earlier when less people are out. i have to go eat breakfast and take my 12 pills for the morning. my magnesium was low this time so now i am taking 8 magnesium pills a day.
i am really missing indian food. i can't wait until i can even get take out from our fav. lil indian restaurant in hoboken.
well since i am slow at getting ready and i need to be ready in 40 minutes i should get going. i will write more later
love
so this week has been pretty good. i had a doctors appt on tuesday-my counts are doing "okay". my hemoglobin and white blood cells are in normal range, however my platelets are low. not low for transfusions yet, but hopefully they will come back on their own. once again, dr. rowley talked about this possibly being the GVHD that I am having. He noticed my face was red, my skin was red which I don't see nor does anyone else, but he knows what to look for. If it stays the way it is I will not have to be medicated. He said it coudl go away on its own. He also put me on a beta blocker because my heart rate is sorta fast. it is a lot mroe fast when i am there and i tried to tell him that but he still put me on the beta blocker.
at night when i was home i took it and it drastically decreased my heart rate and my blood pressure but in my opinion it was going too low. my heart rate was 62 beats per minute and my blood pressure was around 100 or 90/50. i called the next day and asked to decrease the dosage because I felt that this was too drastic of a decline. so they cut my dosage in half.
I have been vomiting a little bit this week again, which hasn't haappened in a while. I do not know if it is the new medication or GVHD. It has been nothing extreme, only 2 times, for one day, but nausea is back a little more.
It is saturday morning and i have to get myself together. i like to go out earlier when less people are out. i have to go eat breakfast and take my 12 pills for the morning. my magnesium was low this time so now i am taking 8 magnesium pills a day.
i am really missing indian food. i can't wait until i can even get take out from our fav. lil indian restaurant in hoboken.
well since i am slow at getting ready and i need to be ready in 40 minutes i should get going. i will write more later
love
posted by Jenn at 10:16 AM
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