Friday, July 28, 2006

it's been a lot of days-and more to come, i think day +114.

after day +100, i stopped counting my days. Alison told me she knows this person that is 5 years out of transplant and still counts his days. For me, now it is just post 100. I am back to dates and what day it is. And I am proud of myself for that because I am a pretty anxious person and I am surprised that I dont' do that. Alison asked if I wanted another 100 day calendar and I said "NO WAY". one time couting 100 days is ENOUGH for me.
I wanted to post the good news. that i am 100% male blood cells-so I am 100% donor.
wooooohoooo.
I do have Chronic GVHD. But it is mild right now. SO I was told I do not have to see the doctor for 2 weeks! The GVHD is at the level the doctor likes right now.
i thought this was funny. i called my nurse practitioner today to see if I could go in the ocean. She said Yes. And then I asked if they had any information on my cytogenics report. This is the molecular structure-and where the leukemia would start. She said they had not had it back. and told me to calm down.
Then she says "however the lab did call yesterday, and asked me if you were a boy and i said yes!" hahaha
My chromosomes are boy chromosomes.
It is amazing someone is saving my life. Like it is truly amazing.
Thank you, donor man, wherever you are.

I am going down the shore to see my grandparents this weekened. I have not seen them for many months, since I got sick.
I bought a new sunblock, I finally found some with clear zinc but it was rather pricey. But I see it as a prescription, something necessary for me.

I need to go eat some lunch.
Much love to you all.
I have amazing support and I know it. And it feels really good. Money can help but it means nothing compared to the love and positive energy I have needed and continue to need.

Thank you.

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