day +99
Tomorrow is the big day-well the first step day +100.
Tomorrow morning, i have to be at hackensack at 8:20 in the morning to get some blood work done, to get a bone marrow biopsy and then to also get my hickman out-as aiden berges calls them, tubies. I wish I could take a picture of them but the line starts out of my boob and that seems a lil funny, but maybe i will find a way to take a picture because some people are like "what are you talking about?"
I am a little anxious, this will determine if the donor has taken over -and how much-this is the first bone marrow biopsy i have had since February 27th. or around that date-
I think that may be the longest i have gone without one in a very long time. I was supposed to go to New Hampshire this weekend with Alison and one of my best friends Mark and Pat, but I cancelled because I was not sure if I would be in any pain. Sometimes the bone marrow biopsy hurts me-and just in case something does happen, I do not want to be 5 hours away, and I thought sitting in the car for hours-after that, just did not appeal to me. We hopefully will be going at the end of July.
This week has been a little stressful, thinking about the results, but ativan (anti-anxiety med) is still my friend.
My mother is going to work starting July 24th, so I am going to have to adapt to being alone, which is somewhat scary but is a good thing.
I must go flush my caps one last time today-
On Monday I have a dermatology appt, because my face has been very dry and bumpy-I never had any face/skin issues, but it is something that can happen during the bone marrow transplant. It has become better but I still want to go to a dermatologist. I also have some birthmarks that I want the doctor to take a look at to make sure he does not want to biopsy any or if he does to do that now.
I think I will be going back to my doctor at The Cancer Institute in New Jersey soon, as long as things are okay, and I miss him. I really have enjoyed going to Hackensack but I guess I am very used to The Cancer Institute. I have only had to get a dose of magnesium in the transplant room at Hackensack, luckily but being that the nurses there have only taken my blood, I never really got to know them the way I have become familiar with the nurses at the Cancer Institute.
One time, after I finished my reinduction therapy, I had a panic attack when I entered the Cancer Institute in February. My nurse who knew me pretty well called the Nurse Practitioner and had page, my doctor, Dr. Schaar to see if I could take some ativan. I calmed down eventually-and the nurse came back to me and said "Dr. Schaar has called to see if you are alright and to keep him up to date." and then she said "you know because you're his baby"
And whether or not it was true, it was something that almost made me cry-because doctors don't have that sense of humanity sometimes. And although I'd say it is better than it used to be, I do feel somewhat rushed sometimes with my transplant doctors. My mom says to me "well they have so many patients and you are doing really well"--
So, I hope that whoever reads this thinks of me tomorrow and let's hope that everything is going well inside my body. I will not know my results for probably at least a week.
Soon, I will post some pictures, I have to go do some things to get things together for school in the case I do go back in September.
xo
~jenn
Tomorrow morning, i have to be at hackensack at 8:20 in the morning to get some blood work done, to get a bone marrow biopsy and then to also get my hickman out-as aiden berges calls them, tubies. I wish I could take a picture of them but the line starts out of my boob and that seems a lil funny, but maybe i will find a way to take a picture because some people are like "what are you talking about?"
I am a little anxious, this will determine if the donor has taken over -and how much-this is the first bone marrow biopsy i have had since February 27th. or around that date-
I think that may be the longest i have gone without one in a very long time. I was supposed to go to New Hampshire this weekend with Alison and one of my best friends Mark and Pat, but I cancelled because I was not sure if I would be in any pain. Sometimes the bone marrow biopsy hurts me-and just in case something does happen, I do not want to be 5 hours away, and I thought sitting in the car for hours-after that, just did not appeal to me. We hopefully will be going at the end of July.
This week has been a little stressful, thinking about the results, but ativan (anti-anxiety med) is still my friend.
My mother is going to work starting July 24th, so I am going to have to adapt to being alone, which is somewhat scary but is a good thing.
I must go flush my caps one last time today-
On Monday I have a dermatology appt, because my face has been very dry and bumpy-I never had any face/skin issues, but it is something that can happen during the bone marrow transplant. It has become better but I still want to go to a dermatologist. I also have some birthmarks that I want the doctor to take a look at to make sure he does not want to biopsy any or if he does to do that now.
I think I will be going back to my doctor at The Cancer Institute in New Jersey soon, as long as things are okay, and I miss him. I really have enjoyed going to Hackensack but I guess I am very used to The Cancer Institute. I have only had to get a dose of magnesium in the transplant room at Hackensack, luckily but being that the nurses there have only taken my blood, I never really got to know them the way I have become familiar with the nurses at the Cancer Institute.
One time, after I finished my reinduction therapy, I had a panic attack when I entered the Cancer Institute in February. My nurse who knew me pretty well called the Nurse Practitioner and had page, my doctor, Dr. Schaar to see if I could take some ativan. I calmed down eventually-and the nurse came back to me and said "Dr. Schaar has called to see if you are alright and to keep him up to date." and then she said "you know because you're his baby"
And whether or not it was true, it was something that almost made me cry-because doctors don't have that sense of humanity sometimes. And although I'd say it is better than it used to be, I do feel somewhat rushed sometimes with my transplant doctors. My mom says to me "well they have so many patients and you are doing really well"--
So, I hope that whoever reads this thinks of me tomorrow and let's hope that everything is going well inside my body. I will not know my results for probably at least a week.
Soon, I will post some pictures, I have to go do some things to get things together for school in the case I do go back in September.
xo
~jenn
posted by Jenn at 10:08 AM
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