a mass email i am sending out
hello
it has been a while since i have written an email. i was hoping that people would just check out my blog but i still find it important to email when there is important news.
first of all, i got out of the hospital!. monday night-it was late-it's weird to be out-i was in 4 weeks!! so it's sorta weird to be out again-and it's also been hard for me to deal with living on the 3rd floor. the second flight of steps terrify me, but i'm trying.
my bone marrow transplant date has been changed! . i am now going in march 7th for my next round of chemo and then march 14th for the transplant. This is better because it gives me time to recover and potentially time to have my brother and sister come visit before I have to go back in the hospital. Also there are many things/tests I need to do before the transplant and everything seemed so chaotic to me because I was scheduled to go in February 14th. This recovery has taken me a while. My bone marrow has been beat up and this round of chemo was very intensive. I did really well. I mean, it sucked but everything was expected that happened. There haven't been any awful surprises.
Today i went to the cancer institute and I had to get up at 8 am. I was so nervous. i didn't want to eat. But i started to vomit. I was just vomiting and vomiting. I felt awful. My nerves were so whacky. I took some ativan to calm me down-and knew I just had to do it. i was scared because I had to go downstairs and also I was scared of getting a transfusion through my veins because they are not the best. BUT, my counts seem to be sticking and it looks like I am finally recovering. Lastnight was difficult with my bones/joints, I had to take painkillers-but I had bad sleep. However, my WBC is up to 8.6 and my Hemoglobin is up to 9.7 and my platelets are up to 64. So NO transfusion today-My WBC is high because I have to inject this stuff called neupogen in me that stimulates my bone marrow which is also what causes the achiness in my joints/bones. However, after I stop taking it, my WBC will half if not go down more. Because once the stimulation is gone, my bone marrow starts to just produce on its own, but it's still somewhat slow.
But hopefully we are done with transfusions for now and we can spend this time recovering and walking and fighting those stairs. I wish I had an elevator. We've been thinking about moving but that seems so difficult, but this is going to be so hard for me with the transplant.
My mom has been with me a lot. She stays with me and takes care of me. Even at 26, it's necessary in this situation to have my mom.
I'm going to watch jeopardy.
Love
jenn
it has been a while since i have written an email. i was hoping that people would just check out my blog but i still find it important to email when there is important news.
first of all, i got out of the hospital!. monday night-it was late-it's weird to be out-i was in 4 weeks!! so it's sorta weird to be out again-and it's also been hard for me to deal with living on the 3rd floor. the second flight of steps terrify me, but i'm trying.
my bone marrow transplant date has been changed! . i am now going in march 7th for my next round of chemo and then march 14th for the transplant. This is better because it gives me time to recover and potentially time to have my brother and sister come visit before I have to go back in the hospital. Also there are many things/tests I need to do before the transplant and everything seemed so chaotic to me because I was scheduled to go in February 14th. This recovery has taken me a while. My bone marrow has been beat up and this round of chemo was very intensive. I did really well. I mean, it sucked but everything was expected that happened. There haven't been any awful surprises.
Today i went to the cancer institute and I had to get up at 8 am. I was so nervous. i didn't want to eat. But i started to vomit. I was just vomiting and vomiting. I felt awful. My nerves were so whacky. I took some ativan to calm me down-and knew I just had to do it. i was scared because I had to go downstairs and also I was scared of getting a transfusion through my veins because they are not the best. BUT, my counts seem to be sticking and it looks like I am finally recovering. Lastnight was difficult with my bones/joints, I had to take painkillers-but I had bad sleep. However, my WBC is up to 8.6 and my Hemoglobin is up to 9.7 and my platelets are up to 64. So NO transfusion today-My WBC is high because I have to inject this stuff called neupogen in me that stimulates my bone marrow which is also what causes the achiness in my joints/bones. However, after I stop taking it, my WBC will half if not go down more. Because once the stimulation is gone, my bone marrow starts to just produce on its own, but it's still somewhat slow.
But hopefully we are done with transfusions for now and we can spend this time recovering and walking and fighting those stairs. I wish I had an elevator. We've been thinking about moving but that seems so difficult, but this is going to be so hard for me with the transplant.
My mom has been with me a lot. She stays with me and takes care of me. Even at 26, it's necessary in this situation to have my mom.
I'm going to watch jeopardy.
Love
jenn
posted by Jenn at 11:23 AM
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